One of the things Madi will need soon is standing "Danny". Because of the weakened muscles caused by SMA, Madi cannot stand. By using a device that helps her stand, her muscles will grow and she may have a chance of learning to stand on her own. I found a case study on the benefits of standing for children. In the article, Ginny Paleg- a physical therapist, talks about both the phsycial and emotional benefits of children learning to stand.
I also found a site called OttoBock that makes a variety of standing devices for children. I can't seem to find a standing "Danny" but they have a standing "Charly". I'm trying to find out if these are the same thing.
KidsMobility.org - The Kids Mobility Network is a cool organization in Colorado that finds Durable Medical Equipment (DME) like wheelchairs, standing devices, etc. that are no longer being used by the current owners. They re-condition the equipment and then donate it to under-insured or un-insured families in need.
InfinitecDME.org - DME stands for Durable Medical Equipment. InfinitecDME.org is an Illinois organization that provides equipment for children and adults with disabilities. Individuals can donate or sell DME at this site.
IowaCompass.org - is a used equipment referral service, similar to the one in Illinois. Individuals post classifieds here with used medical equipment they are selling.
I spent a lot of time tonight just researching where you can find the kinds of medical devices Madi will need - hopefully some of these resources will help!!!
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